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Cystic Fibrosis Hopesource Foundation is a research and clinical development foundation

Aims

  • To promote and fund better treatment and so improve life expectancy and quality of life of Irish people with Cystic Fibrosis. Central to this is establishing and funding multi-disciplinary teams in our hospitals..

 

  • As of 2011, both CUH Temple Street and Beaumont Hospitals now have full multi disciplinary teams in place. CF Hopesource continues to monitor and work with local hospital management and medical teams to maintain and strive to always improve upon the care CF patients receive.

  • To provide Cystic Fibrosis isolation facilities (In and Out patient wards) in our hospitals, in line with best international practice

  • After many years hard work by all stakeholders, during 2010, at an overall cost in excess of 6million, 2 new ambulatory CF day care centres were officially opened at CUH Temple Street and also Beaumont Hospital. As of 2011, CF Hopesource continues to work with hospital management and medical teams towards increasing the number of In-Patient Isolation suites, dedicated to CF patients who must be admitted for treatment.
  • As of 2011 CUH Temple Street has no dedicated beds for CF patients and Beaumont Hospital has 4. International best practice is that the ratio should be 10%, so with over 100 patients attending CUH Temple Street and 130 attending Beaumont Hospital we have a long way to get in excess of 20 dedicated isolation suites. The journey has started and will not end until these isolation suites are available

  • To promote and fund research into Cystic Fibrosis in Ireland.

  • 2008-2010: 100,000 committed to 3 year CF research project at Dublin City University (DCU) by Professor Niall Moyna

  • To promote awareness of Cystic Fibrosis in Ireland.
  • To assist in the development of a Cystic Fibrosis Microbiology Laboratory within Tallaght Hospital as the centre of excellence
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